MEDIA

Mila's Miracle Foundation has gained national and international press attention as they’ve worked tirelessly to find and fund paths to a cure for Batten Disease and other pediatric neurologic conditions.

Click the icons below to view recent media coverage on Mila’s Miracle Foundation.

MEDIA ARCHIVES

• Boston Children’s Hospital, Spirit of Giving, The Dare Issue, "In Rare Form"

• NeurologyToday, "An Antisense Oligonucleotide Therapy Looks Promising for a Rare Form of Batten Disease"

• Left Hand Valley Courier, "Mila’s Miracle featured at CU’s GoldLab Symposium"

• Chemical & Engineering News, "Have antisense oligonucleotides hit their stride?"

• BioQuick News, "Patient-Customized Anti-Sense Therapy Possibly Successful for Young Girl with MFSD8/CLN7 Batten Disease, an Ultra-Rare and Generally Fatal Genetic Disease"

• Fox 5 DC, "New customized drug is giving young girl suffering from rare brain disease new hope for cure"

• The Boston Globe / STAT News, "Saving Mila: How a tailor-made therapy, developed in a flash, may have halted a young girl’s rare disease"

• Science Magazine, “A tailormade drug developed in record time may save girl from fatal brain disease”

• Daily Mail, “World first as experimental drug appears to REVERSE symptoms in girl, 7, with incurable disease that causes paralysis, blindness, dementia and early death”

• MIT Technology Review, “Gene treatment made for a single child cuts a hyper-personal path for precision medicine”

• Inquisitr, “Record Drug Development May Save Girl From Fatal Brain Disease”

• Patient Worthy, "A Girl From Colorado is Receiving An Experimental Treatment for Her Batten Disease"

• Left Hand Valley Courier, "Mila starts leading-edge treatment"

• Times-Call, "Boulder County girl undergoing experimental treatment for Batten disease"

• Boulder Patch, "Batten Disease: Gene Therapy Offers Hope for Boulder Girl"

• Boulder Lifestyle, "Finding a Miracle"

• Forbes, "Rapper B.o.B Just Started A GoFundMe To Prove The Earth Is Flat"

• Times-Call, "Boulder County family down to wire in fight against rare disease"

• Buzz.ie, "Family must raise $1M to save their 6-year-old daughter's life"

• Fox 31, "Boulder family races to raise $1 million for clinical trial for daughter’s deadly disease"

• New York Post, "Family races to save 6-year-old with fatal genetic disease"

• Fox 31, "Family racing to raise funds for daughter facing incurable genetic disease"

• Today Show, "Parents of little girl with rare, deadly disease race time to save her"

• Climbing, "Mila Makovec: A Little Climber in Need of Our Help"

• Times-Call, "Boulder County family is funding race against deadly Batten disease"

• Fox 31, "Governor’s wife joins fight to help family raise $4 million for clinical trial"

• Fox 31, "Teachers school each other to help families’ wishes come true"

• Fox 31, "Charity steps up to help family raise $4 million to find cure for daughter’s deadly disease"

• Daily Mail, "Tragedy of Girl, 6, Who Suffers from Rare Disease that Will Rob Her of Speech, Mobility and Eyesight — and Could Kill Her Before She's a Teen"

• The Denver Post, "Family’s struggle with Batten disease mirrors the journey of others fighting rare diseases"

• Fox 31, "Family trying to raise millions to fight daughter’s rare, deadly disease"

• Daily Camera Longmont News, "Boulder County family desperate to raise money to combat rare Batten disease"

• Daily Camera, "Photos: Boulder County Girl Diagnosed with Batten Disease"

• ABC Denver 7, "Longmont girl battles rare disease with no cure in sight"

For media inquiries, contact Julia Vitarello.